This climb clearly demonstrated that neurodegenerative diseases do not represent the end of 'normal' life, but that people living with the diseases can in fact go on to achieve staggering feats. Mount Kilimanjaro in Tanzania stands at 19,340 feet, not only making it the highest peak in Africa, but also the highest free-standing mountain in the world.
"This 'Kilimanjaro Leap of Faith Adventure' was meant to challenge the body, expand the mind and foster courage in dealing with the diagnosis of a neurodegenerative disease. There have been some really tough parts of the trek, especially altitude sickness, for which there is nothing you can do. Imagine that on top of our neurodegenerative diseases. But, we've made it and that's a credit to all of us who believe that we can go beyond the limitations of our disease and still achieve incredible results, both physically and mentally. We have remembered all those with neurodegenerative disease who climb personal mountains each day, as we have taken the steps to this summit," said trip organiser Lori Schneider, founder of Empowerment Through Adventure.
The climbing group comprised of a number diverse individual, including musicians, teachers, adventurers, philanthropists, sports enthusiasts, psychologists, social workers, artists, program managers, engineers and parents. The medical team includes an MS researcher and biochemist, a neurologist, a physician's assistant, physical therapists, sports trainers and the medically trained staff from the climbing company, Alpine Ascents International. Most of the group already enjoyed outdoor activities and they have all dedicated themselves to training to prepare themselves for the challenge and adventure. A key attribute of the group is their positive outlook, regardless of the hurdles they faced, and their unwavering commitment to supporting one another throughout the trip.
"What this wonderful group of people with MS and Parkinson's disease has done is incredible. When I was first diagnosed with MS I ran away from my life in fear. I left a 22 year marriage, a 20 year teaching career, sold my house, left my community, and tried to run from my MS diagnosis. That changed when I reached the top of the world, becoming the first person with MS to reach the summit of Mount Everest. The idea behind the Kilimanjaro Leap of Faith Adventure was for me to share the lessons I have learned about believing in yourself and following your dreams. I think it's worked!" Continued Lori Schneider.
The Kilimanjaro climb has certainly had its challenges. Some have suffered from altitude sickness, occasionally worsened by the symptoms of their neurodegenerative disease. It is for this reason that three people with MS and five of the climbing companions did not reach the summit. However, everyone has assisted and supported each other every step of the way. All have gone beyond their limitations to redefine who they are and what they are capable of achieving.
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